ⓘ Supported living or supportive living refers to a range of services and community living arrangements designed with individuals with disabilities and their fami ..

                                     

ⓘ Supported living

Supported living or supportive living refers to a range of services and community living arrangements designed with individuals with disabilities and their families to support disabled citizens to attain or retain their independence or interdependence in their local communities. Supported living is recorded in the history of the NASDDDS, celebrating its 50th Anniversary. Community Supported Living Arrangements was a landmark federal multi-state demonstration to illustrate the federal role in community living in the US. Supported living is considered a core service or program of community living programs funded through federal-state-local partnerships.

                                     

1. In the United States

Supported living has been defined in diverse ways in the US, including early conceptualization in New York as integrated apartment living, and one early definition by the state of Oregon:

"Supported living is defined as persons with disabilities living where and with whom they want, for as long as they want, with the ongoing support needed to sustain that choice."

"Supported living.its simplicity is elegant. A person with a disability who requires long-term publicly funded, organized assistance, allies with an agency whose role is to arrange or provide whatever assistance is necessary for the person to live in a decent and secure home of the persons own."

As a form of community living development, supported living became identified with certain approaches to services and community, including the own home initiatives. These services involved an understanding of "formal" and "informal support" and their relationship, and changes from "group thinking" approaches e.g., ten intermediate care facilities for 15 persons each to planning services for, with and by the person "targeted to be served." For example:

"Supportive living represents a movement within the intellectual and developmental disabilities field to provide support services in regular housing to adults with disabilities. Direct support services can be provided by paid staff, including live-in roommates or boarders, paid neighbors, a person hired as an attendant, a support worker or personal assistant, as well as more traditional agency and modified shiftlive-in staffing. Professionals, friends, families, and other "informal supports" can also assist people to live in their homes. Supported living may be joined to a movement toward decent, affordable and accessible housing."

Supported living in the US has multiple known origins, including:

  • As provider and agency accounts, and organizational development.
  • As parent and "service user" accounts of supported living, homes and support services, and as linking with self-advocacy efforts in states in the US.
  • As linking with independent living as supportive living in the community for "special population groups" or persons then "deemed in need of institutional settings", including nursing homes.
  • As a major reform initiative in the US to provide more choices, more integrated and more regular homes and apartments for people with the "most severe disabilities".
  • As state reform and development to a supportive living approach, involving new service structures, program development and financing.
  • As a federal initiative to define and fund supportive living.
  • Finally, as federal, state and provider term applying to "all sorts" of community based living services i.e., intellectual and developmental disabilities field. Recently, in one state that term even referred to a segregated residential campus, including for children, the antithesis of supportive living ideals and principles.
  • The development of a service category of community living for people deemed capable of more independent living also known as semi-independent living.
  • As part of the movement toward direct support professional and community support workers in the US and other countries such as Canada.
  • As part of organizational studies during that period, including differentiating family support for children and supportive living for adults.
                                     

1.1. In the United States Evolution of the concept

Supported living also developed along different trend lines in the US, two of which included a broadening of the community living concepts in the new community paradigms of community membership of support and empowerment of conversion from an institutional to a community paradigm of person-centered planning of community regeneration and neighborhood assets and the service system change to housing, homes and personal assistance and supports in quality community living. Supportive living was an ally of independent living to assure that special population groups could also obtain the benefits of IL services and concepts.

                                     

1.2. In the United States Community participation

First, part of leadership was back to the broadened concept of "community living" based on emerging concepts and practices in "community participation." Supported living linked with the concepts of integrated recreation, inclusive education with community opportunities, community membership, self-determination, "community seeding", "person-centered", and personalized supports. This resulted in projects such as the Community Opportunities Project of the Louisiana Developmental Disabilities Council, which were based on roles and relationships such as: Paul becoming a church member, fiancee, health club member, good neighbor, regular at Freds Country Western and coffee shop, and self-advocate with statewide recognition.

                                     

1.3. In the United States Supportive living

Second, the concept of supportive living was broadened from a service category of a residential program i.e., facility-based program model with bundled services to bridge the gap toward the independent living concept of housing and personal assistance services health-funded, the concept of regular homes with the availability of "intensive support services" special population groups, "severe disabilities", a "range of community support services", decent community life, and principles of community and self-determination/choice.

This agency and systems change work was based on the identification of leading practice of organizations supporting people with disabilities in the community, including the following program design components: the separation of housing and support, home ownership and leasing, individualized and flexible supports, and individual choice. This program design requires "service coordination/case management/service broker/support facilitator", "individualized funding" and "person-centered approaches to planning and supports" This framework has been used in the design of a person-centered course in community services and frames the supported/ive living approach of university doctoral students to graduates.



                                     

1.4. In the United States Housing and "homes of our own"

Generally, though the focus remained on making peoples places into "homes of their own" which became a federal initiative to also explore other housing and support options on the local levels.

On the service configuration and program design levels, a multi-case study research design was used to explore the five identified characteristics of a "housing and support" approach: the separation of housing and support, "home ownership", including tenancy, close tie among assessment, individual planning and individualized funding, and flexible and individualized support services, and choice. Separate developments were proceeding on personal assistance services which began with the independent living movement led by leaders such as now Honorable Judith E. Heumann and late Ed Roberts; it remains current today.

A state policy study in South Dakota explored the relationship of state systems change necessary to move to a full range of regular housing and support options from the current facility-based service design in comparison to modifying the current small apartment/home structures such as those in Connecticut. To date, there is no evidence of this type of systems transformation in the US as of 2012though we have moved to reporting on homes of ones own, personal assistance services and supportive living approaches, including over 189.000 participants of the latter two categories.

In 2013, Robert Agranoff reported in the "Public Administration Review", that leading state systems in the US in Intellectual and Developmental Disabilities indicated an 80-90% conversion from a large institutional system to small, dispersed community homes and services in the community. These changes were based on efforts in states which involved major organizational changes in the NGO non-profit agency sectors, and with variability in state government public policies, departments and financing.

                                     

2. Community support standards in the US

Supportive living in the US is an important movement within the context of decades of federal policies, sometimes reluctantly, for community support services in communities nationwide as part of community integration, community participation, independent living and inclusion. This movement has been accompanied by a strong emphasis on self-determination, with roots in rehabilitation in the 1950s and also, in education in the 2000s

In the 1990s, this movement emphasized the skill standards of personnel, including direct service workers who were called "human service workers" and their "community managers" 2013, Department of Labor statistics. Increasingly, in 2013 with the consumer-directed services developed in these fields, education and training standards are being revamped within the context of the new US Direct Support Workforce and the Centers for Medicaid and Medicare.



                                     

3. Community living

The term community living was an outgrowth of the development of "residential services" in the communities in the US, and a departure from the development of institutional facilities. As part of this development and growth, different typologies of these services occurred beginning with group homes, staffed apartments, foster care, and then a variety of new and innovative services such as early intervention, family support services, supportive living and "related services". Today, community living may involve over 43 residential typologies, including board and care homes, personal care homes, nursing facilities, independent living facilities, supportive living and homeownership, family caregiving, personal assistance services, medical homes, and for elders, assisted living facilities.

                                     

4. In the United Kingdom

Supported living is the term given by local authorities in the United Kingdom to encompass a range of services designed to help disabled citizens retain their independence in their local community.

Previously, housing and support were usually provided by a charity or local council. Now mentally and physically disabled people can live in their own home and have personal support provided by another organisation or by hiring a personal assistant paid visiting or live-in carer.

As of 2009, the government in the UK expected "local councils to give people with learning disabilities a genuine opportunity to choose between housing, care and support options that include:

  • Supportive living.
  • Village or intentional communities." p. 73
  • Small-scale ordinary housing.

In the research and development sector, the UK has been a leader in supportive living residences and group homes, and in a concept and practice termed active support as part of community integration.

"Supportive living" in the "Valuing People, 21st Century" report defined this approach as: "concerned with designing services round the particular needs and wishes of individuals and is less likely to result in housing and support that is designed around congregate living. Department of Health research has shown that supported living is associated with people having greater overall choice and a wider range of community activities." p. 73



                                     

4.1. In the United Kingdom Teams in the UK

Local supported living teams can advise what supported housing is available in any given area. Other assistance may include:

  • emergency call centre
  • home adaptations
  • mobility equipment
  • meals on wheels
  • a personal assistant or other care services
  • Direct Payments to pay for privately sourced care services
  • security
                                     

5. International collaborations

As Linda Ward 1995 wrote in her edited text on "Values and Visions: Changing Ideas in Services for People with Learning Difficulties", "the flaws of the "group home model" were recognised sooner in the USA than the UK." p. 12. Termed "supportive living", she says these developments have been richly documented by Racino, Walker, OConnor, & Taylor 1993. Written at the time of the nine-state pilots by the federal government on Community Supported Living Arrangements in the US, she noted great interstate variability in what it was and did identify the primary principles near the 1991 national organizational study. For comparisons, about the same time, Paul Williams 1995 identified the residential services available in Great Britain, including life sharing, hostels, staffed houses, living alone, lodgings, family placements, group homes, living with families, short term care, hospitals and village communities, among others.

One of the most important initiatives of the 1980s and 1990s on homes and community living in the United Kingdom was the "influential paper "An Ordinary Life" which was shared in the US through our internationally known colleague David Towell, then of the Kings Fund and Great Britains National Development Team. One of his books, An Ordinary Life in Practice, was paired with his strategic framework for principled national change. Within the comprehensive book 1988, Richard Brazil and Nan Carle describe an ordinary home life, Linda Ward describes developing opportunities for an ordinary community life, Paul Williams and Alan Tyne values for service development normalization-based, Wolf Wolfensberger, Alice Etherington, Keven Hall & Emma Whelan as service users where I live, where I work, Philippa Russell on children and families, Jan Porterfield on regular employment, the late James Mansell on training, David Towell on managing strategic change, and Roger Blunden on safeguarding quality, among others.

In 2013, the current framework is inclusive and sustainable housing and communities, similar in both the US and UK with sustainability worldwide. In 2017, these inclusion initiatives were discussed in relationship to community integration theories at the American Society for Public Administration in Atlanta, Georgia

Canadians, while not typically using the term supported living which is current in the US, were partners in the institution to community movement which included the "reallocation of some funds toward support and services for community living options" Prince, 2002. Termed in historical texts, the deinstitutionalization movement, the Nordic countries, and New Zealand and Australia, were early partners in community development.



                                     
  • Texas state supported living centers formerly state schools are a collection of residential facilities run by the state for people with intellectual
  • supportive of a living wage. The church recognized that wages should be sufficient to support a family. This position has been widely supported by the church
  • Independent living as seen by its advocates, is a philosophy, a way of looking at society and disability, and a worldwide movement of people with disabilities
  • KeyRing also known as KeyRing Living Support Networks is a charity based in The United Kingdom. Their main focus is to support vulnerable adults to live
  • The Brenham State Supported Living Center formerly Brenham State School is a state - operated living center for disabled people along Texas State Highway
  • The Living End supported Cold Chisel in their One Night Stand tour, with shows at Townsville, Darwin, Perth, Macedon Ranges and Sydney. The Living End
  • An assisted living residence or assisted living facility ALF is a housing facility for people with disabilities or for adults who cannot or who choose
  • Cooperative Living Organization CLO formerly Collegiate Living Organization, in Gainesville, Florida, is one of the oldest continuously operating independent
  • Sustainable living describes a lifestyle that attempts to reduce an individual s or society s use of the Earth s natural resources, and one s personal
  • Living systems are open self - organizing life forms that interact with their environment. These systems are maintained by flows of information, energy and
  • alive as of the dates of the cited supporting sources. It is estimated that there are between 150 and 600 living people who have reached the age of 110